: Rick G.'s Grandson
zukiester1 11-27-2007, 07:02 PM I just received word from my dad that his 6 year old grandson, (who any of you have met would have called you by name because he can name every competitor by face and car), is in the childrens hospital in Salt Lake City and has been diagnosed with Lymphoma. It is too large and wrapped with blood vessels and arteries to be able to operate. The doctors are going to start Chemotherapy to try and kill it. All of your thoughts and prayers will be greatly appreciated. Rick has asked for no phone calls at this time as it is just too crazy. I am sure he would not want to burden anybody with this. I am posting this here in the comp section because Alec is such a huge fan of Rock Crawling and I am sure would love to here that you all are pulling for him.
Jerod Gersch
alwayssmiling67 11-27-2007, 07:14 PM Prayers go out to Alec & Rick and family.
...just know that there's a lot of folks out their
hoping and praying for your strength during this time.
pepdaddy 11-27-2007, 08:27 PM Terrible news for sure. Best wishes to a great family. Rick has always been so supportive of Zach (Yost) and his fight with cancer, even though it's something I'd hope was never needed, I do anything I can to help out.
RedBullJeep 11-27-2007, 08:58 PM I've been searching for a pic of Alec hanging with our crew at XRRA in Moab...he's our coolest fan for sure and we're all very bummed to hear he's come up against a speedbump in his life. I'll post up a pic of his HUGE smile when I find it...our best wishes go out to Alec and his amazing family!
nasnut67 11-27-2007, 09:18 PM What a bummer will make sure that we get the word out here.
Dirty Harry 11-28-2007, 07:58 AM I will keep your son and your family in my prayers and hope to see Alec back at the races soon.
Philly2Crazy 11-28-2007, 08:13 AM That is horrible to hear, We will keep Alec and the whole family in our prayers!
davesmith 11-28-2007, 08:14 AM Our thoughts and prayers are with them.
caddishack 11-28-2007, 11:02 AM Hang in there Gerschs. You guys all have great attitudes. WIN!
JPGUY 11-28-2007, 11:06 AM Thoughts and prayers for the Gerschs' from Ground Control.
GRIDWNC 11-28-2007, 11:48 AM Adding the family to the list in our prayers as well.:(
Kimber
zukiester1 11-28-2007, 01:10 PM Thanks for the show of support all. I will get an address where they are staying if any of the competitors would be interested in sending Alec a poster, pic, or whatever to help brighten his stay away from home. He has his favorites, and if any of you are on here it would be so cool to see him receive something from ya.
Thanks again,
Jerod Gersch
allusee 11-28-2007, 01:23 PM Please extend our prayers to him and the family. I KNOW first hand what a trying time this is going to be for them all!
Please know that the SLC childrens hospital staff if GREAT! They KNOW what there doing. Dr. Pulisipher, and Dr. Boyer along with the nursing staff there will make things comfortable for the family!
Please, if there is anything I can do "Just say the word" I will do it (within reason).
What Room and Name is he registered under, please feel free to pm me with the info. when you get a chance!
My prayers to you Rick and your family! (FYI. Manny-a male nurse is great, he's there on weekends mostly. Zach's fav. nurse there)
Here's a web site:
http://www.lymphoma.org/site/pp.asp?c=chKOI6PEImE&b=1573289
allusee 11-28-2007, 01:35 PM If he is at Primary Childrens Hospital
The Address is:
Primary Childrens Hospital
100 N. Medical Drive
Salt lake City Utah 84113
There is a Ronald McDonald House right down the street.
http://www.rmhslc.org/
The main house is located at:
Ronald McDonald House
935 East South Temple
Salt Lake City, UT 84102
Phone: 801-363-4663
Also, there is 2 apartment housing unit thru Ronald, Talk to Kristen (Social Worker there in Utah)
I have lots of useful info. if they need it!
My heart goes out to the family, I am SOOO VERY SORRY for you all! Prayers are being sent, and will continue!
Please keep me posted!
Amber Yost
zukiester1 11-28-2007, 02:04 PM Amber, thanks for all the info. I was just looking at my arm band from zach's fight and was thinking about how terrible it would be, then whammy you get blind-sided. Alec's mom and dad are being put up in a ronald house today, and he is at Primary childrens hospital under Tabor or Taber (sp)? I hope you and Shane and Zach are doing well can't wait to see you all again.
RedBullJeep 11-28-2007, 02:14 PM Ronald McDonald House is one of the greatest charities in the world. We have three different familes that are close to us that have been helped out by that program and we view them as a blessing.
WBlackie 11-28-2007, 02:33 PM Just terrible, but remember this is a speed bump and they can be overcome! Hang in there Alec!
This is bad news, all of us here are praying for the little guy. He is great to watch running around the tracks. If the family needs anything let us all know so we can help if we can. Hang in there things will get better. M
allusee 11-28-2007, 02:57 PM Amber, thanks for all the info. I was just looking at my arm band from zach's fight and was thinking about how terrible it would be, then whammy you get blind-sided. Alec's mom and dad are being put up in a ronald house today, and he is at Primary childrens hospital under Tabor or Taber (sp)? I hope you and Shane and Zach are doing well can't wait to see you all again.
I just need a name and room number at Primary.
It really sucks they are having to go through this, please, please tell them if they need to talk, to call me! I don't care what time of the day or night it is. 208-695-4997
I know sometimes it's best just to have someone to talk to, who knows and feels the pain up close and personal! Someone to understand you in a serious time of need!
Please tell them to call if they need or want to! I am sure things are nuts right now, I understand. When there ready that is!
I have placed him on the top of my prayer list and will continue to circulate the prayers nationwide!
The key is to keep HIM HAPPY, Keep him SMILING! It's the best medicine of all! I LIVE by that EVERY DAY NOW!
Keep Smiling,
Amber
RP Films 11-28-2007, 03:29 PM This is very sad news. We hope for the very best. Our prayers are with you & your family.
SuperRanger 11-28-2007, 05:01 PM I so sorry to hear this. That is in the past now. All you can do is FIGHT, stay strong, and support Alec.
zukiester1 11-28-2007, 06:15 PM Just got off the phone with my dad and he said they ran multiple tests today, and did not find cancer anywhere else. Good news. He is in 4414 at the Primary Childrens Hospital, under Alec Taber. He is handling things pretty well. They have a four month Chemo treatment planned out, starting tomorrow. My dad has his laptop setup next to Alec's bed and is reading all of your posts, and telling him who they are from. So if any of you would like to post him a personal message he will get it. Thanks to everyone for their thoughts and prayers.
allusee 11-28-2007, 06:50 PM What is the address to the Childrens Reginol Medical Center? Post it please I need to be sure he get the things I am sending please!
Alec,
My friend, your a strong boy! Always remember that and fight your ass off to beat this bug you have! Your a Gersch, your tough as mudd! Zachary says, "GET IT" His favorite two words these days!
PACC (People About Childhood Cancer) is sending a pkg. to you, filled with lots of goodies we hope you will like! Please enjoy them!
Please ALWAYS KEEP SMILING, no matter what!
Our love and prayers to you!
Amber
Rick, Please post the address of the hospital, and a time line as to how long Alec will be there in the hospital, so I know where to mail the PKG. for him. I can mail it to the hospital, the ponald or elsewhere! Let me know please. It is ready and waiting to be mailed!
powdr7 11-28-2007, 06:52 PM Our best to all the familes and people involved!!! :(
zukiester1 11-28-2007, 07:16 PM Fixed it he is at Primary Childrens Hospital
WBlackie 11-28-2007, 07:38 PM Alec, I need to know, which color do you prefer, orange or black? I am sending you some BlackStar race decals.
Can we get a confirmation on the mailing address? I want these to find Alec.
Like Jerod said , I've thought of Zach every day since his bout with this terrible disease started. His band has not left my wrist since I got it. I never thought we would be going through this too. Thank you Amber for your offers to help - when I can carry on a conversation again I'll call. This is the most emotional thing I have ever experienced.
This is Alec's address:
Alec Taber - Room 4414
Primary Childrens Hospital
100 N. Medical Drive
Salt lake City Utah 84113
Alec is resting now. His vitals are good but the tube running through his nose and down his throat is driving him crazy. That should be removed tomorrow.
Some chemo drugs were injected in his spinal fluid today and he will begin his chemo treatments tomorrow. If the plan for his treatment stays on course he will be here at Primary Children's for 2 to 3 weeks. That will put him home for Christmas if all goes well - then back to Salt Lake every 3 weeks for a 1 week chemo treatment for 4 months.
It all sounds so simple on paper - but it loses a lot when you are watching a little boy fight for his life.
We have been watching rock crawling and rock racing videos with Alec today - he'd rather watch them than watch cartoons.
I have the laptop scrolling pictures from home on his tray so he has some familiar faces and places.
Once again - you guys are a big part of Alec's life - Thanks for all you do.
Rick, Cindy, Kerri, Bobby amd Alec
Alec, I need to know, which color do you prefer, orange or black? I am sending you some BlackStar race decals.
Can we get a confirmation on the mailing address? I want these to find Alec.
Alec Taber
Room 4414
Primary Childrens Hospital
100 N. Medical Drive
Salt lake City Utah 84113
He said he wants the orange ones!
Thank you Weston
zukstur 11-28-2007, 09:05 PM Alec, Hang in there. Bob, Drey and I are going to Phoenix to see a few of your old friends. BZ, Shannon, Tracy, RJ, Brad & Roger, Rob B. and many more. I will let them know how you are doing.
We will call you saturday evening on how we did at the races.
Love ya
Rick D.
allusee 11-29-2007, 07:18 AM No problem, anytime my friend!
Pkg. on it's way, to Alec. Theres a bunch of stuff in it from Pacc Group and us all here at the Yost household. Myself, Shane, Pepper, Miranda, Dillon & Zachman wish you well!
Keep Smiling My friend!
Not sure what videos you have, so if you get duplicates from us, give them to another little boy there or keep them, whatever ya wanna do!
Amber
Like Jerod said , I've thought of Zach every day since his bout with this terrible disease started. His band has not left my wrist since I got it. I never thought we would be going through this too. Thank you Amber for your offers to help - when I can carry on a conversation again I'll call. This is the most emotional thing I have ever experienced.
This is Alec's address:
Alec Taber - Room 4414
Primary Childrens Hospital
100 N. Medical Drive
Salt lake City Utah 84113
Alec is resting now. His vitals are good but the tube running through his nose and down his throat is driving him crazy. That should be removed tomorrow.
Some chemo drugs were injected in his spinal fluid today and he will begin his chemo treatments tomorrow. If the plan for his treatment stays on course he will be here at Primary Children's for 2 to 3 weeks. That will put him home for Christmas if all goes well - then back to Salt Lake every 3 weeks for a 1 week chemo treatment for 4 months.
It all sounds so simple on paper - but it loses a lot when you are watching a little boy fight for his life.
We have been watching rock crawling and rock racing videos with Alec today - he'd rather watch them than watch cartoons.
I have the laptop scrolling pictures from home on his tray so he has some familiar faces and places.
Once again - you guys are a big part of Alec's life - Thanks for all you do.
Rick, Cindy, Kerri, Bobby amd Alec
allusee 11-29-2007, 08:05 AM Also, Go to the Parent Resource Center on 3rd Floor) if I remember correctly and speak to Cindy about food vouchers for the cafeteria there at the hospital. She has them and gives them to families staying in the unit. There helpful as things get quite expensive.
Also, the resource center is a great place to "Get Away" and has great reading material and lots of information, plus computer lab and printers if needed!
Also, get in touch with Kristen (on of the social workers there at Primary) she is great, she helped us ALOT with all kinds of things! just a great person, tell her I said hello as well!
Amber
allusee 11-29-2007, 08:07 AM Alec, I need to know, which color do you prefer, orange or black? I am sending you some BlackStar race decals.
Can we get a confirmation on the mailing address? I want these to find Alec.
Wes, How bout an old team comp. shirt (Just make sure you WASH it before sending, as the UNIT needs to STAY Clean!
Just a thought?
Amber
DocRocks 11-29-2007, 09:00 AM Rick, Alec and the whole Gersch family, my thoughts and prayers are with you as you deal with this challenge. Stay strong and think positive. We're all pulling for you.
WBlackie 11-29-2007, 11:15 AM I just sent out a package to Alec so let me know when it gets there so I know it arrived safely.
Amber, don't you think an old crew shirt will lose rockstar value if I wash it? I think the shirt from the Texas Grand Nationals is nice and sweaty:laughing:
Yuo have no idea how much your support means. Every post gets a response from Alec.
We just finished walking the length of the bed and back - amazing how much good it does him. He has chosen me for his physical therapist - I hate how it hurts him but the trust he has placed in me is priceless.
Chemo will start this afternoon - let the war begin!
Amber, thanks for your help - you're right - the people here are great. We are in the Ronald McDonald house and finally got Kerri and Bobby (the parents) to leave the bedside for a little while.
I'm watching Alec right now - it is good to see him sleeping well.
Thanks again - Rick, Cindy, Kerri, Bobby and Alec
I just sent out a package to Alec so let me know when it gets there so I know it arrived safely.
Amber, don't you think an old crew shirt will lose rockstar value if I wash it? I think the shirt from the Texas Grand Nationals is nice and sweaty:laughing:
Will do Weston - thanks
RedBullJeep 11-29-2007, 12:24 PM Amber, don't you think an old crew shirt will lose rockstar value if I wash it? I think the shirt from the Texas Grand Nationals is nice and sweaty:laughing:
Not if you send him DSI's shirt...all Dave did was stand around on one leg anyway :dustin:
WBlackie 11-29-2007, 03:29 PM Thats true, but he is all better now (better is a relative term for DSI). :flipoff2:
Cindi & Dan 11-29-2007, 04:46 PM :jeep: Hi Alec! Get well soon sweetie. We love you bigger than the sky! :D Oh and Bosley & White Boy Say hello.. {{{woof! woof! }}}
Hang in there and we will see you soon!
Uncle Dan, Cindi, White Boy & Bosley :jeep:
zukstur 11-29-2007, 10:27 PM Alec you will be getting a package in the next couple of days from all the guys over at Spidertrax.
Stay strong Little buddy.
powdr7 11-29-2007, 11:43 PM Alec, stay strong buddy. You have a great big group of people behind you and prayer for you!!
I'm working on a package of stuff for you from the CRAWL Mag crew!
zukiester1 11-30-2007, 04:04 AM All of you who are sending packages to Alec: Thank you so much, I am not there but I can imagine the smile on his face when he receives them. I will be driving to SLC this weekend if anybody between Dove Creek and SLC wants to send something up to Alec.
We live in a small community, it has only been a couple of days since the prognosis, and if I listed out the things that were being done for Alec here; well lets just say that all of you would be trying to buy DC real estate. The outpouring of love and support has been tremendous. I hope it doesn't stop, Bobby, Kerri, Alec, and Cole have a long pricey road ahead of them. I am reminded again of the many reasons I do without so many conviences, here in little ole DC. Hang in there sis the whole world is behind you. Let Alec know that an early Christmas sleigh disguised as a charcoal Dodge will be headed his way bright and early Saturday morning.
Rudezuk 11-30-2007, 04:46 AM Rick this is horrible news bro. I wish you guys the best of luck with this fight. If you need another guy to talk to about what is going on, pm me ill send over my number.
Word of advise to you as this stuff can get overwelming. When the dr.'s want to do different procedures, ask questions, lots. Find out what they are doing, what the side affects are and how it is going to affect the little guy. This helps you from getting blind sided during the treatment.
I hope the care package we sent out brings some smiles and joy.
take care
Shane
allusee 11-30-2007, 06:19 AM He trusts you, thats great! Be sure that he has a safe person he can be with, meaning someone who he can sit with and know nothing bad is going to happen to him!
What Chemo. do they have him starting?
Also, be sure you CHECK the IV DRIP Bags and make DAMN sure they have been signed off, and be CLEAR with the nurses and Docs. with what YOU WANT and what ALEC WANTS! Don't let them try and TELL you how things are, your his advocate, you have to speak up for him! Seriously! I went round and round with docs, nurses, staff ect. some of whom probably think I am a BITCH To this day, but I didn't care because Zachary was the concern and I was damn positive things were gonna happen our way! Don't let them tell you crap. I had to FIRE two nurses there in SLC, Joan & Emily! Neither of them were doing anything for Zachary and I was fed up, maybe they were having a bad day I don't know but their nurses and they need to NOT have bad days especially there in the Unit!
Anyhow,
Tell Mike the Child Life Guy to bring in some cool stuff for Alec to do, HE WILL! He will print pictures for you, send pkgs. out if needed, whatever you need. He is great.
If you and the family need to get out, there is a Gym, you can get a free membership to, talk to Cindy in the Resource Center, there is a hot tub if nothing else have mom and dad use it. It's very close the the hospital (walking distance)
Look for the pkg. Wed. of next week!
All our love and prayers to you all!
KEEP HIM SMILING and ACTIVE as MUCH as Possible!
Yuo have no idea how much your support means. Every post gets a response from Alec.
We just finished walking the length of the bed and back - amazing how much good it does him. He has chosen me for his physical therapist - I hate how it hurts him but the trust he has placed in me is priceless.
Chemo will start this afternoon - let the war begin!
Amber, thanks for your help - you're right - the people here are great. We are in the Ronald McDonald house and finally got Kerri and Bobby (the parents) to leave the bedside for a little while.
I'm watching Alec right now - it is good to see him sleeping well.
Thanks again - Rick, Cindy, Kerri, Bobby and Alec
allusee 11-30-2007, 06:21 AM Alec, Zachary says! HELLO! Keep Smiling!
baja racer 11-30-2007, 09:15 AM From the Rock-Tech-Racing team;
with much love and concern our prayers are with you. We understand as we have just delt with this same very challenge.....your not alone! things will get better. With a strong family and loving friends you will pull through this.
If there is anything that We can do to help please let us know.
We are sending a small care package for you to enjoy!
Stay strong and just know we are all pulling for you.
-Rock Tech Racing/Go Fast!
Alec is still listless and doesn't want to do much. There seems to be an improvement over yesterday and a bit of life in his eyes though. He is more alert when he is awake and sleeps well.
Still nothing to eat or drink yet - the surgery issues bother him most right now.
The outpouring of well wishes, prayers and help is phenomenal. From our home town to here on Pirate and lots of places in between - we are truly blessed to have so many take time to show that they care.
Mike and Jody, thanks - we received your package today - the movie went right in to the player and I'm sure the rest will become a mainstay in his wardrobe.
Alec - Kerri - Bobby - Cindy and Rick
rube bonet 11-30-2007, 03:44 PM Rick,
PM me your E mail address, I've got some pics for you. Anything I could do to help, let me know.
Alec,
Be strong kiddo, we are all pulling for you.
Rob Bonney
allusee 12-01-2007, 05:19 AM What Chemo. is he on, Please be sure to ask and keep a list of the chemo. he gets from start to finish it will help in the future.
Who is his nurse today? If it's MANNY, He's Awesome! (Though Manny might be working on Sundays now)
Play Doh is awesome for the kids, if he likes it! It makes them forget about where there at, and they concentrate on what to build!
Go out to the store and find him the play-doh desk, it comes with everything, plus he can use it as a table fpr his food, maybe decorate it up with the stickers and such he will be getting!
Just a thought! I am a big believer, that anything we can do to keep the kids SMILING and ACTIVE plays a HUGE part of their well being. Keep him HAPPY and comfy. as much as possible, as I know it may be hard right now!
I can't flippin believe you all have to go through this, I can remember the day when we were told this about Zachary just one year ago. IT SUCKS ASS!
My emotions were, well I don't even know where or what they were, in fact things would race into my brain, race out, race in, race out! It was not a pretty sight to se, However we managed somehow to band together and STAY STRONG because of this BOARD right here, the support and help we received was amazing and made it easy to de-stress by talking to all of our wonderl friends. So I guess I am going on about this because you all will need time to CRY, USE it, DO it and TALK about it! I had to talk to myself in the bathroom of the hospital rooms in the dark because I didn;t want Zach to see me upset, so I did what I needed to, and still do! It sounds crazy, but it's not, it kept me from going crazy!
Keep us posted!
Amber
Jerod - Tash and Amie showed up here this morning with a BUNCH of gifts and cards from friends and family at home. He is 100% better today! He can have clear fluids by mouth for the first time and his catheter is out (for the second time). The surgery side effects still seem to be the most uncomfortable but they continue to abate.
Amber thanks for your tips and insight - we are much better prepared as a result of your helping us out. There is so much you don't know or don't think of when you are in this situation.
Thanks again for your encouragement, thoughts and prayers - they really mean a lot.
Alec - Kerri - Bobby - Cindy and Rick
Cindi & Dan 12-02-2007, 11:15 AM :jeep2: Hi Alec! We are thinking about you and wanted to stop in and say hi! :jeep2:
We love you!
Uncle Dan, Cindi, Bosley and White Boy
_Jocko_ 12-02-2007, 05:48 PM Having two kids myself, I always hate to hear about these kinds of things. It's always nice to see the outpouring of support from the four-wheeling community. I'm sure that does a lot for morale, not just for Alec but for the whole family/friends.
Alec,
Hang in there little buddy. Pick a favorite picture from any of my galleries and I'll get you a print to hang on the wall.
Jocko
zukiester1 12-02-2007, 07:54 PM Well, I just returned from Alec's world up there at Primary Childrens, what an awesome place. The staff is so dedicated to making the entire stay an experience and not a jail term. Alec is responding well to the Chemo drugs (COP), and his uncle Jerod has a really good feeling about the outcome. Alec loves to see the Pirate board come through for him. He watches lots of movies, so if anyone has extra DVD's or VHS to send him he would greatly appreciate it. As upbeat as Alec's progress is, I must tell you that I have never been somewhere so sad in all my life. I have a 6yr old boy and a 2yr old girl, and everywhere you go there is one of your kids with tubes coming from their little bodies, and beanies covering too many little bald heads. If anybody needs a reason to celebrate this season, (other than why this season exists), rejoice that your child is not sick, and if your child is sick, rejoice in the institutes like Primary Childrens Medical Center.
Jerod Gersch
allusee 12-03-2007, 06:32 AM Glad to hear everyone is being POSITIVE, that Key in these situations, besides Alec is STRONG, he will Over come this!
Kick some Butt Alec, thinking about you everyday and every night, praying for you to get WELL!
Stay Strong, Stay Happy!
Remember the Chemo. side effects will pass!
Take care!
zukiester1 12-03-2007, 05:47 PM Just got home from work, heard that they took Alec's IV out and let him go outside the Intensive Care Unit. However he would not drink enough water so they had to put the IV back in. He smiled and laughed last night for the first time in about a month, he ran his remote control into one of his nurses and laughed pretty good. Thanks again to all for the support.
Jerod Gersch
TheBigSgt 12-03-2007, 08:49 PM Rick, I'm so sorry to hear about this. If there is anythig I can do, just call call. I live about 40 mins from there and have friends on staff. You need anything, I'll do my best to find it for you or get it done. 801-201-6778.
Like Jerod said it was another good day for Alec - I came home last night and went to work today. I'll go back up there Thursday when he gets his first big dose of chemo.
We are so blessed to have the support of friends and family - I can't describe how much it means to us. Most of my time here at home is spent fielding questions and answering messages. I just went through the messages on our home phone. The heartfelt concern and offers of help are overwhelming.
We live in a town of about 600 people - not only do they offer their hearts but their wallets too. The amount of donations to Alec's fund at the bank is overwhelming - from personal checks - the spagetti dinner Sunday - the bake sale today - the taco dinner planned for the weekend and those are just the things I know about. There are probably lots of other things going on I don't even know about.
This board is phenomenal - I have forwarded the link to htis thread to lots of people asking about Alec - thank you all so much for the support. I am attaching an update from Kerri last night. She posted this on the hospital Care Pages.
1 December 02, 2007 at 09:56 PM MST
Fist off thank you for taking time to visit Alec's little page here. Things are going tremendously well here. Alec got to eat for the first time today and has wanted to do nothing but go for rides in the wagon. These are both HUGE steps in our world!! If I would have posted updates like I should have you would know what I'm talking about. He seems to be enjoying more of the sites around here. He smiled and laughed today for the first time in over a week. That melts a mother heart like you could not believe. I think it was the same type of feelings I had when Alec came into our lives. His Papa bought his a remote control car and he plans on running into the nurses with it, especially the night nurses who do their best to make sure you get no sleep. Alec's Papa left today, so were hoping he won't go through withdrawl from his Papa who he has picked over every one of us in this hole ordeal. My dad got a Doc to show us a picture of the mass that was growing in his stomach. It looked to be about the size of a cantolope. The doctor said with this kind of cancer it doubles in size everyday that it is not treated!Pretty amazing. As for the rest of us, we are doing well. A lot of you probably wonder how we could be doing so good, but when you know your child has cancer, you deal with it. When we heard it was the "good" cancer to have, it was the greatest news we had recieved. We are being strong for Alec because that is what he needs the most. He's not crying, so why should we? Anyways, that my whold outlook on the whole thing. Well, I just thought I would update all of you on what's going on. I will update again tomorrow night. Thanks so much for all your love, prayer, and support. It means more than anything. Thanks again, Kerri
Glad to hear everyone is being POSITIVE, that Key in these situations, besides Alec is STRONG, he will Over come this!
Kick some Butt Alec, thinking about you everyday and every night, praying for you to get WELL!
Stay Strong, Stay Happy!
Remember the Chemo. side effects will pass!
Take care!
Amber - your posts are most timely. I was trying to think of something to keep his hands busy when you post up about Play-Doh and remote controlled cars. I found out I may really have a knack for clay sculpture but it doesn't do much for Alec - but he does like remote control crawlers! Why didn't I think of that!
The band I wear for Zach has taken on a very special meaning now.
Thank you for your help and encouragement
2 December 03, 2007 at 09:56 PM MST
Today things went well again today!! This morning Alec got unhooked from the machine that beeps constantly. Great news! We went around and ran over the nurses with our remote control car that Papa bought him. He thought it was the coolest thing ever. It finally put a smile on his little face. Thanks Papa! Alec decided that he didn't like apple juice enough and so the IV tubing got hooked back up, but we are working on something else to drink so he can be free. We went for a million rides in the wagon today, he even took a nap in it this afternoon. I think he knows that if he's in his wagon nothing will happen to him. He had to go and get an ECHO (?) today to make sure his heart is doing well before the Chemo starts on Thursday. We haven't heard anything so I guess that's good. His labs are all looking good so that's great. That's about all for today. We are getting ready to go to bed and hoping for sleep. Just thought I would also let everyone know how wonderful all the nurses and docs are up here. They truly try and help you in any way they can. Thanks again for everything, hopefully just more good news keeps coming for me to post!! Talk to all of you later, Kerri
allusee 12-04-2007, 05:12 AM Amber - your posts are most timely. I was trying to think of something to keep his hands busy when you post up about Play-Doh and remote controlled cars. I found out I may really have a knack for clay sculpture but it doesn't do much for Alec - but he does like remote control crawlers! Why didn't I think of that!
The band I wear for Zach has taken on a very special meaning now.
Thank you for your help and encouragement
Its the little things that make us look at life differently! I sent more bands, and also the pkg. you get might have a bunch of dumb stuff but there is surely something he will enjoy in there! Let me know when you get it please!
So glad the Rc car is getting some smiles out of the little man, can you post any pictures of Alec? Would LOVE to see him smiling!
How about getting him a "Nerf Dart Gun" for those nurses Alec Doesn't like so very much!
Have Mike (Child Life Man) print out some pictures of Alec's Rock Crawling Teams, and post them on the ceiling over his bed, he will lke that!
I am hopeful, Alec will Overcome this! Prayers being sent all the time,
Stay Strong!
Thanks for the updates!
Amber
3 December 04, 2007 at 08:45 PM MST
Hello everyone again. Lot's of things today. We went down and got chest x-ray done and there was a little fluid around the left lung, but not enough to be concerned with. Tomorrow we get to drink the really good orange stuff and go down for a CT before we start the Chemo on Thursday. Also on Thursday, another spinal tap has to be done to make sure no cancer cells are hiding behind the spine. I guess the cells like to do that. They will put him to sleep for this, so that's good. Thursday is going to be a day of real tough things but Alec is a trooper and will pull through just fine. So, lots of prayers!!! Bobby and I are doing good. We just hang out and take Alec for a lot of wagon rides. There are playstaion's and nintendo's in all the rooms so it gives him something else to do. We are hoping to go down to the third floor tomorrow and go to the play room where are tons of things to do. No word yet on when we will get to come home, but we are really hoping that at least maybe we can come home for Christmas. His next Chemo treatment after Thursday won't be again until December 28, so let's all cross our fingers and hope that we get to come home! Alec is a little worried that Santa won't know where he's at, but I've told him that Santa comes to the hospital. That's about all for today, so I will write again tomorrow night and let everyone know how the day went. Thanks agian to all of you who take the time to read this and to everyone for thinking of us. Keep us in your thoughts and prayers. Thanks, Kerri
Amber----Thanks - you have no idea how much help you are.
Thanks for all your thoughts and prayers -
Alec, I need to know, which color do you prefer, orange or black? I am sending you some BlackStar race decals.
Can we get a confirmation on the mailing address? I want these to find Alec.
Alec called me today - he sounded better than he has for a month.
He couldn't wait to tell me about the cool stickers he got from Weston
Thank you Weston - he was really excited about getting stuff from you.
Terry Dagen 12-05-2007, 06:41 AM Thanks for the updates Rick. All of us are making sure to keep your family in our thoughts and prayers. Your positive attitude will help the outcome to sway in a positive direction.
WBlackie 12-05-2007, 04:17 PM Its great to hear that Rick!
4 December 05, 2007 at 06:47 PM MST
A couple of things to tell you about today. Alec is still not hooked up to any machines, so that's wonderful. You have no idea how great it is to get 3 or 4 solid hours of sleep without something beeping. We went for the CT today and there is good news. The little round of Chemo that we got last week destoryed about 1/4 of the mass!! That's a good sign because it means the chemo is working. The other news is that there is too much fluid around the left lung so they have to go in and drain it out tomorrow. They will leave the tube in so that it will keep draining so the bad news they can't start chemo until Friday to make sure that all the fluid is gone. He will go get his spinal tap tomorrow so hopefully all goes well from there. Alec is still enjoying his rides that he goes on. He has now chosen the wheelchair over the wagon which is good because I can't drive the wagon very well. He woke Bobby and I up at 4:00 this morning to tell us he was ready to go for a ride. He impatiently waited until 7:00 and then went for his morning ride. I would like to post pictures, but I'm not sure how, so as soon as his Papa get's here, hopefully I can get some posted. I'll let ya know how tomorrow goes. Thanks for all the posts. Alec loves to hear from all you. Kerri
Great news today - we knew by the way he was perking up that the chemo was doing its job on the cancer.
We'll take a day delay on the next treatment for a 25% kill on the tumor.
Kerri's descriptions include enjoying - waiting impatiently - chosen one mode of transportation over another - these things haven't been in Alec's life for 3 or more weeks. He was lethargic and sick and no one knew why. A diagnosis and a treatment plan have way more hope than watching a little boy lay there and not having an idea of what to do.
I'm going up in the morning - can't wait to see him.
More gifts and cards and well wishes received today - Absolutely overwhelming - Thank you
pure-adrenaline 12-05-2007, 09:36 PM Great to hear! Anything I can do let me know.
R.J.
5 December 06, 2007 at 09:46 PM MST
Another big day for us here at our new home. Alec had to go get a tube put into his left lung because there was too much fluid to drain it by needle. While they were in doing that, they also did the spinal tap which they take out fluid to test for cells and they put chemo meds back in. A day of horrible pain for all of us, but he is doing so good. He was in pain for a couple of hours, but by the time he actually woke up he finally realized that his Papa was here and perked right up. He decided that he would go to the game room on the 3rd floor and also ride a bike around. Then he decided to walk all the way from our room to a place we call the "tunnel" that connects this hospital to the adult hospital. It's quite a walk and he hasn't walked that far since we've been here. It was so amazing that after all he went through today, he did more than he's done so far. What I was thinking was a little speed bump in our little road map, was actually a big milestone. Alec recieved a HUGE package today from Toyo Tires, and that put a huge smile on his face. He also got pictures from a guy named Rob Bonney, who is one of Alec's heroes and also one of his favorite rock crawling buddies. We put the pictures all over the wall. Alec enjoys getting mail and he really thinks it's cool that all of you send him little notes on the computer. We also found out today that the Dove Creek Press has a page just for him. He thinks that is so cool that his picture is on the internet. So I guess for tomorrow Alec will go get another x-ray done and see how much fluid is left, hopefully none. We will then start our hard doses of chemo. Big things ahead but Alec is a fighter and will pull through just fine. I am extremely tired tonight, so I won't write as much. Just wanted to tell everyone thanks for taking the time to send Alec and all of us a little note. It means the world to us. Keep us in your thoughts and especially in your prayers. Talk to all of you tomorrow. Love, Kerri
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I went to x-ray with Alec this morning - looked good to me as far as fluid in his lung - looked about like the other one does.
Gotta go - Alec wants to go for a walk
Thanks for all you do
WBlackie 12-07-2007, 09:45 AM Dang Alec, judging by the posts your granddad puts up you are a bigger rockstar then any of us!
Alec just had a visit from Andrew. Andrew is with Corbeau here in the Salt Lake area. They received an email about Alec's fight with cancer and thought they would do something special.
They took a Corbeau kids seat and attached rollers and armrests to it!!! We were just talking this morniing anout how he needed a chair of his own so he didn't have to stay in bed to sit and play games. It is the hit of the hospital staff - averyone is coming by to take a look at it. When Alec wakes from his nap we'll take it out for a spin.
Again - thank you doesn't seem adequate but I don't know what else to say
zukstur 12-07-2007, 04:59 PM Sounds like Alec has a new Corbeau ride.:D
Thanks to all of our friends at Toyo. Spindertrax and Corbeau for your support.
Alec I'll give you a call in the morning.
Love ya
.
allusee 12-08-2007, 09:58 AM Awesome on the new RIde, outta be cool in the pods riding it. Fab a tow strap or something and have him be towed around on it outside his room, hell just use sheets and have some fun!
Keep Smiling!
6 December 08, 2007 at 06:02 PM MST
I did a post this morning for yesterday but Dad just told me that it wasn't up and it is now 6:00 tonight, so I guess I will just do yesterdays and todays. Things are actually about the same. Alec started his chemo treatment yesterday and things went really well. His Papa and Granny stayed the night with him and his Papa took him for walks from late at night to the wee hours of the morning. Alec also wanted some tomato soup amongst all that so Papa found a nurse and got him some soup. The doc's told me with one of these meds they crave things, like pregnant people, and they want them now. Right now his Aunt Amie and Uncle Jason are on a mission to find him Cars fruit snacks. He actually has fruit snacks, but not those ones. Bobby is sick so he can't really be around Alec since he is on the chemo. Right now Alec's counts are good, but they told us his white count will more than likely go to zero. Alec is on his second round of chemo today and still doing well. Let's keep our hopes up that he don't get sick. And yes, he will lose his hair. That's a question that a lot of people have asked. He's not really that excited about it, but I told him that it will grow back. This place is filled with such hope and joy that I wish all of you could see it. The kids all seem to be okay that they are here and adjust to it. There is so much here to do and so many wonderful nurses and docs, it's amazing. Well I guess I am going to go to my new kitchen, the cafeteria, and eat some supper so I will talk to all of you later. Thanks again for all the support, Kerri
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We are having a discussion with Alec right now on the varieties of pee colors he has as a result of the chemo - last night a bright yellow and tonight an orange pop color.
He continues to eat tomato soup and crackers and a Spongebob candy called crabby patties. Hey - if he'll eat it and it tastes good to him he can have it!
Thank you for all you do for us
Awesome on the new RIde, outta be cool in the pods riding it. Fab a tow strap or something and have him be towed around on it outside his room, hell just use sheets and have some fun!
Keep Smiling!
We spend most of our time out of the room - Alec doesn't really like to be in the room so we walk the pods and sometimes the other halls on the 4th floor. We have an idea for a device to attach the wagons to the IV stand things.
Thanks for everything Amber
zukstur 12-10-2007, 06:46 PM Alec,
I shipped some things to you by UPS, from Shannon, Cottin, and I. Hope you like them.
.
RedBullJeep 12-10-2007, 07:58 PM they crave things, like pregnant people,
Isn't he a little young for kinky stuff like this??? :dustin:
Rick, tell Alec the entire Red Bull team is sending our love! Actually, we're sending it to your entire family and hope eveyone is doing ok in this tough time.
pure-adrenaline 12-10-2007, 09:04 PM Isn't he a little young for kinky stuff like this??? :dustin:
Rick, tell Alec the entire Red Bull team is sending our love! Actually, we're sending it to your entire family and hope eveyone is doing ok in this tough time.
Well he also has a Team Redbull and Team Alcoa jersey on the way.
RedBullJeep 12-10-2007, 09:43 PM Right on RJ!
zukiester1 12-11-2007, 04:16 AM Well he also has a Team Redbull and Team Alcoa jersey on the way.
Thats so cool RJ, this little guy absolutely is enthralled with all of you.
Swatty's Hottie 12-11-2007, 04:43 AM Alec,
Glad to hear things are OK for the moment. Keep your head up, it will get better. Sounds like you are getting a lot of cool stuff. I'm jealous of the Corbeau ride. Sounds really cool!
You and your whole family are in our thoughts and prayers. Look foward to seeing you at the races next year!
Kimberly
Like Jerod said, he idolises you guys - we watch the videos and he calls the names of the drivers as they appear on the screen when he feels like it - if he doesn't feel good he just watches.
Alec's presence is felt all over the hospital - we distributed the Crawl magazines everywhere.
Alec rested good last night - the chemo is causing sores in his mouth and throat and he is uncomfortable from that and the chest tube in his side doesn't help his level of comfort either. His counts are down from the chemo but that shows the chemo is working. We are sequestered to the unit now until his counts come back up.
Alec goes for a chest x-ray this morning to check for fluid in his lungs - hopefully there is none so they can take the chest tube out when he gets sedated for the spinal tap later in the morning.
This little update doesn't sound very good but it is all part of the treatment. He continues to fight and makes his wishes known.
Thank you for your thoughts and prayers and posts and gifts - it all means so much to all of us.
Rock Ape 12-11-2007, 04:24 PM Being a fairly new parent(daughter turns 1 on thursday) I cant imagine how hard this is on the little guy.If there is anything (certain toy,video game..whatever he wants....)let me know.If it will help him feel some joy in a situation he probably doesnt 100% understand Im more than willing to help.
Im not much for praying but Ill send some this way.
7 December 11, 2007 at 06:32 PM MST
I know that all of you are wondering why there was no update for the last couple of days but there really hasn't been no news. Today was another big day for us. Alec went and got another spinal done but they didn't remove the chest tube. It was a little bit of a bummer, but I figure the doc's are smarter than me and they know what they are doing, so were hoping maybe tomorrow it will get to come out. Alec now has mouth sores which also go into the throat and makes you in horrible pain as you can all imagine. That's a side effect of the chee mo medicine. He also seems to be getting a cold, so they started him on antibiotics to make sure it doesn't lead to pneumonia. He's done really well through this chemo though. The doctor's were talking about maybe letting us come home this weekend, but now that this stuff is going on they told us a week or maybe two. We are just hoping to be home for Christmas, but if were not I guess it will be okay. Alec's Papa and Granny left today and won't be back until Saturday. Bobby and I are a little worried about doing all of this on our own, but we can handle it. The question is whether Alec will be able too. Cole also went home with them, but he's excited to finally be going home and seeing all of his friends. We recieved some more packages today, so thank you. Our room looks like a toy store but we did send some more stuff home. Yesterday the Utah Jazz came by the hospital and visited all the kids. Alec thought that was so cool, now if we could just get the Steelers up here we would be doing good. I guess that's really all that's been happening. We are just happy to be almost through the first dose of Chemo. We should be done by Friday and then will have our next one the 28th, but hopefully we won't be here for more than a week with that one. Thanks to everyone for posting messages it really does mean a lot. Also to everyone who e-mails, I read every one of them to Alec. Please keep up the support an prayers, we will need them every step of the way. I will write all of you tomorrow night. Thanks, Kerri
RedBullJeep 12-11-2007, 10:35 PM Bobby and I are a little worried about doing all of this on our own, but we can handle it. The question is whether Alec will be able too.
Three answers:
First, even though it feels lonely sometimes, you're not alone in caring about and praying for Alec...you've got a ton of friends out there!
Second, yes, you can handle it. It's a speedbump in his life and Alec is driving a moonbuggy. His young body is full of life...and that leads to the third...
Because he's just a child, what he knows is that this is the way it is, and nothing more. If he has a reason to push through this, he will, so your leadership and support through this time will prove to be his greatest asset. Find every way to love, and motivate him, even if it means calling in backup...don't be afraid to ask for help if you need it. You already know it, you're part of a huge family of offroaders and it's surprising what a little help can do...but people won't know you need something unless you ask.
I know it's not easy...I've seen it firsthand with a close friend. Keep your heads up and a smile on his face :dustin: And tell Alec that Becca says that she's ready to give him a ride in her crawler when she sees him next! She'll even let him drive!
zukiester1 12-12-2007, 04:21 AM So I finally managed to upload some pics my dad sent, we have been remodeling Kerri & Bobby's house while they are away, so here are some pics of Alec with all his new surroundings.
http://i90.photobucket.com/albums/k255/zukiester1/AlecsPictures597.jpg
http://i90.photobucket.com/albums/k255/zukiester1/AlecsPictures591.jpg
http://i90.photobucket.com/albums/k255/zukiester1/AlecsPictures586.jpg
http://i90.photobucket.com/albums/k255/zukiester1/AlecsPictures585.jpg
http://i90.photobucket.com/albums/k255/zukiester1/AlecsPictures568.jpg
http://i90.photobucket.com/albums/k255/zukiester1/AlecsPictures565.jpg
http://i90.photobucket.com/albums/k255/zukiester1/AlecsPictures289.jpg
zukstur 12-12-2007, 05:39 AM I knew sombody had a picture of my co driver in the car.
Hang in their Alec and when you get well we will go for a ride in the new two seat rockracer on the new practice course. Yes we have some jumps, woops, and lots of other cool stuff.
.
8 December 12, 2007 at 08:37 PM MST
Well I finally lost all patience I had today and yelled at the nurse. The doc's think the reason why his chest tube isn't draining is that maybe there is a clot somewhere in the line that none of us are able to see, so they have put Alec on a no-fat diet and of course he doesn't want anything on the menu. I informed the doc's that he wasn't eating very well and they could either allow him to at least have 5g of fat and they were not going to feed him by putting a tube in his nose or else we were leaving! You just get to the point where you have been here long enough that being polite just really don't matter anymore. But we have a very good nurse tonight that explained to me the whole issue with the chest tube and made my whole understanding alot clearer. I guess we've had so many good days and the last 2 days have been so hard that you just don't know how to prepare for them. You think that now that he's got the chemo done that he should just bounce right back, but we've come across these issues and it's just frustrating. So, other than me being mean to everyone today everything else is going good. The mouth sores that Alec has will go away with time, but he is being treated with atibiotics. They did another chest x-ray today to see how his lungs were doing. I can hear the snot everytime he breathes but it hurts so bad for him to cough. They are giving him nebulizer treatments so that helps out alot. They also started him on another antibiotic to help clear up the cold. Alec recieved another package today with stuff from Rick Deremo and his other rock racing heroes. The walls in his room are covered with posters and he enjoys having something fun to look at. He still isn't excited about getting stuff, but he will get there. I will write all of you tomorrow night and let's hope that I don't get kicked out of the hospital tomorrow after I talk to the surgeons!! Thanks for the support, Kerri
Three answers:
First, even though it feels lonely sometimes, you're not alone in caring about and praying for Alec...you've got a ton of friends out there!
Second, yes, you can handle it. It's a speedbump in his life and Alec is driving a moonbuggy. His young body is full of life...and that leads to the third...
Because he's just a child, what he knows is that this is the way it is, and nothing more. If he has a reason to push through this, he will, so your leadership and support through this time will prove to be his greatest asset. Find every way to love, and motivate him, even if it means calling in backup...don't be afraid to ask for help if you need it. You already know it, you're part of a huge family of offroaders and it's surprising what a little help can do...but people won't know you need something unless you ask.
I know it's not easy...I've seen it firsthand with a close friend. Keep your heads up and a smile on his face :dustin: And tell Alec that Becca says that she's ready to give him a ride in her crawler when she sees him next! She'll even let him drive!
Thank you Dustin
rube bonet 12-13-2007, 08:13 AM Hey Rick (and family),
what Dustin says, we all mean it.
Hey Alec,
everyone on our team is pulling for you.
rob bonney
Cindi & Dan 12-14-2007, 06:08 PM :)December 14, 2007 1:55 PM
Hey there little buddy, from one fireman to another hang in there, The whole fire fighters brotherhood is behind ya buddy. We look out for our own. Just keep the faith, god will prevail. Fireman Kurt
Alec, this message was sent to me for you from a firefighter friend of mine who fights fires from planes.. He saw a picture of you with your fireman hat on and wanted to send happy vibes your way!
We love you sweetie and you are in our thoughts and prayers each and every day.
Bosley and White boy got new sweaters to wear since it is so cold outside. They can't wait to see you & lick your face... haha!! :D
Keep up the good work Alec! We love you!
Sleep tight!
Love, Uncle Dan & Cindi
Here are Kerri's last 4 updates - we came home to get some things done - so hard to leave.
12 December 16, 2007 at 07:44 PM MST
It was another day full of questions with the answers that we didn't really want to hear. Alec now has fluid in his right lung and they are talking about putting another chest tube in. We are hoping though with enough walking and making him sit and cough that crap up that a chest tube won't happen. I'm also beginning to wonder if the antibiotic he is on is the right one. But, I have to remember that the doc's know what they are doing, but it's hard because you are the mom. His counts haven't came up yet, but that is supposed to take 5 to 7 days, so I guess I was just hoping for a miracle. Until the white count comes up, the mouth sores will continue to be there. They look so painful but he's doing well with them. Everyone has left and now it's just Bobby and I again. Bobby is at his sister's watching football and I'm just hanging out. We have been here now for almost 4 weeks and yes, we are going crazy. We take turns going places so that we can at least get out of the whole hospital setting. Our next treatment is the 28th, but we will probably still be here then. I'm hoping that is not the case, but I told the doc that they had to let us go home for at least a couple of days in between the treatments. We are hoping though that the next round doesn't hit him so hard and the side effects won't be so bad. Well, I think I will go down and find something to eat. I will talk to all you tomorrow!! Thanks for all the messages. It's so nice to hear from all of you! Kerri
December 15, 2007 at 08:27 PM MST
Today was about the same as yesterday. He get's a little better with each day. They are getting ready to give him a shot with a med that will boost his white count and I'm pushing them to give it soon, because the sooner the count's come up the sooner we get to come home. The hopes of getting home for Christmas are looking lesser and lesser with each day because his count's need to be up before they let us go. My goal is Christmas and so is Alec's so between the hope of both of us, we will be. My mom and dad are going to go home within the next two days and then they will be back up probably the end of next week. Uncle George and Amie came up today and so that was nice. Alec has been asking for George all week and was very excited to see him. He really wants George to spend the night, so it's look like George gets the couch! Alec still has the mouth sores, but they are getting better. He still has a real hard time eating and is still getting nutrition through the IV. He looks like an ethiopian because he's lost so much weight, but that was expected. I guess that's really all for today. Thanks, Kerri
December 14, 2007 at 07:45 PM MST
Another successful day here at our new home. We actually made some progress. The chest tube finally came out!! He is still recieving nutrition from his IV and actually tried to eat today. He had about a teaspoon of yogurt and then tried to eat a twix bar. The twix came right back up but the yogurt stayed down. His hair is starting to thin out, but he still has quite a bit. It may be the next round it actually falls out. The doc needs his counts to be up before they can send him home and that usually takes 5 days to a week so we are still shooting to be home for Christmas. We may have to have Christmas in March. Cole is still young enough that he doesn't know, but it still don't seem quite fair to him. He is doing better than he has the last couple of days. He is still coughing up tons of snot, but that is a good thing. They put him on a morphine drip today because he is having so much pain from the mouth sores. It's the most painful thing I've ever saw. They do have some mouth rinse that numbs his mouth, but he doesn't want anything to do with it. He will let me put some on a q-tip and rub on his lips and a little inside and it seems to help. So, I guess that's really all for today. Everyday will get better from here on and that's what you must tell yourself or you will go crazy. My parents brought us up the newspaper and it's amazing that people are still giving. You all have no idea how truly thankful we are. It's just so nice to know we have all the support in the world. Thank you. Talk to you all tomorrow, Kerri
December 14, 2007 at 10:39 AM MST
I didn't have time lastnight to do the update because my parent's came and by the time I got around to thinking about doing it, it was late. Another stressful day full of nurses that once again needed my advice. Alec has mouth sores and can't eat, and he is constantly getting different med's and therefore he pukes everytime something get's in his mouth. I finally told them either they find a way to feed him or we are outta here. They finally started giving him nutrition through the IV so hopefully he will start perking up. His white count is down to zero, but we are not isolated to our room. Thank goodness!! Alec's chest tube is putting out only what the nurses put in so hopefully we can get that thing out. That seems to be our biggest hold up right now. He still has his cold but seems to be getting better. A lot of the people that were here when we got here have already went home and I just can't wait until that wagon comes to our door so we can get outta here!! We still have to come back on the 28th, but a couple of days away will be so nice. Well it looks like Alec is headed down to get a chest x-ray so I gotta go. I will write all of you again tonight. Thanks again for everything, Kerri
RedBullJeep 12-16-2007, 09:50 PM Kerri,
Keep the news coming as we check in daily to see how our champ is doing!
One piece of advice and take it as you will, but you sound to be very much counting on going home ASAP. Slow down with the hopes and work step by step and you'll find you are home sooner. You know the saying, a watched kettle never boils. It feels that way waiting on on someone to heal and it's clear Alec needs time.
I am not saying don't push to be sure things are getting done right. The goal is to get Alec well and you do have to be agressive in SELECT areas for sure. In some cases, doc knows best, in others, well, doc may have other things he's doing so your eyes and common sense need to be there as Alec's backstop.
And FYI, my best Christmas ever was in Feb. I was 8. Similar circumstance as Cole. Worry about Alec medically and if it comes down to it, Christmas on the road can be just as good for Cole as Christmas at home. Remember, Christmas is MAGIC! It can take place anytime and anywhere if you want it to. :dustin:
Hang in there!!! We all know it cannot be easy, but for Alec, it's a SMALL price to pay!
Tell Alec that Dustin and Becca from Red Bull said HI!
pure-adrenaline 12-17-2007, 12:56 PM Kerri,
Keep the news coming as we check in daily to see how our champ is doing!
One piece of advice and take it as you will, but you sound to be very much counting on going home ASAP. Slow down with the hopes and work step by step and you'll find you are home sooner. You know the saying, a watched kettle never boils. It feels that way waiting on on someone to heal and it's clear Alec needs time.
I am not saying don't push to be sure things are getting done right. The goal is to get Alec well and you do have to be agressive in SELECT areas for sure. In some cases, doc knows best, in others, well, doc may have other things he's doing so your eyes and common sense need to be there as Alec's backstop.
And FYI, my best Christmas ever was in Feb. I was 8. Similar circumstance as Cole. Worry about Alec medically and if it comes down to it, Christmas on the road can be just as good for Cole as Christmas at home. Remember, Christmas is MAGIC! It can take place anytime and anywhere if you want it to. :dustin:
Hang in there!!! We all know it cannot be easy, but for Alec, it's a SMALL price to pay!
Tell Alec that Dustin and Becca from Red Bull said HI!
tell him Santa will find him no matter where he is!
RJ - Kerri called me and said Alec received your package today - he is having a pretty good day so I'm sure he was excited to get it.
Thank you -
zukstur 12-17-2007, 07:45 PM Thanks Kari for the updates.
Alec I sent Santa and Email and told him where you are so he can find you on Christmas eve.
.
13 December 17, 2007 at 07:26 PM MST
Things are finally starting to look up, I think. Alec had his chest x-ray today and things were good!! I was really thinking about refusing the chest tube, but Joyce talked me out of it. I know it's for the best, but as a mother, you are always looking for a second opinion. He went for a couple of walks today and it helped a tremendous amount with hacking up all that crap. His hair is really starting to come out now. No, he isn't bald, it's just thinning out. Everytime he picks his head off of the pillow, a little pile of blonde hair is there. Alec recieved several packages today, including one from one of his rock crawling buddies. Alec is going to have so many team jerseys by the time we get home, we will have to redecorate our room. We also recieved a countdown to Christmas from Melissa, and he was pretty excited about that. We are now on day 3 of waiting for the white counts to come up, so hopefully by tomorrow or the next day they will start coming up. They are also going to put him on a new antibiotic to see if that helps his fever. Hopefully we have reached rock bottom, or as we call it, "chemo hell", and now all we can do is climb back to the top. His mouth seems to be a little better, but nowhere close to healed. He is talking and drinking a little, but still no food. He has gained a pound so that's really good. He is just skin and bones, so whether it's one pound or five, we'll take it. The Utah Grizzlies came today and visited. Alec was asleep, but Bobby and I got to see them. You know, it's pretty neat that these guys take time to come see the kids. The floor was almost empty a couple of days ago, and now it's full again. Hopefully we all won't be here too long. I guess all that matters is that Alec kicks this and we will never come back here again. We will probably have to come back and visit the staff because they have become just like family to us. We have been here 4 weeks today and were still hangin in there. We are pretty proud of ourselves, because this isn't easy, as many of you know. Well, I think I'm going to give Alec his sponge bath, and get him ready for bed. Thanks for everything. Keep the prayers and support coming, Kerri
pure-adrenaline 12-17-2007, 10:57 PM Well I hope it brought a lil smile to him.............
R.J.
RedBullJeep 12-17-2007, 11:23 PM Well I hope it brought a lil smile to him.............
R.J.
You know Alec...there's no LIL smiles on him...it's either full smile, or a devious look...nothin lil about him :dustin:
Droopy 12-18-2007, 04:32 AM Kim and I send our thoughts and prayers. Look for a package from us soon.
allusee 12-18-2007, 05:01 AM Thanks for the updates. I look forward to seeing them knowing he will be just fine. The pictures are great!
Live Strong and Fight Harder
Alec, I love your PJ's
Amber
14 December 19, 2007 at 08:18 PM MST
I didn't do an update lastnight becasue there wasn't really nothing to update. But today was finally a good day!! Alec's count finally went up, so that is the most wonderful news we've got in a while. He had a really long night, but has finally slept today. The fever's seem to be getting less and the mouth sores look like they are finally starting to heal. His hair keeps falling out more and more, so I'm sure he will be bald by Christmas. I've had to line out the nurses a couple of times on what meds need to be given and how, but it's getting better. I think we have finally reached rock bottom and now we can only go up, I hope. My mom and dad are coming up tomorrow and will stay until Christmas. Bobby and I may try and come home on Friday, depending on how things go here. There comes a point where you have to get outta here before you go insane. I forgot what our little ole town looks like. My sister and her family will also be up for Christmas and Bobby's sister's will also be here so were hoping we will at least get outta here for Christmas. Hopefully the counts will continue go up and they little will let Alec go home at least for a couple of days. Thanks again for all the support. I think of all of you daily. Kerri
15 December 20, 2007 at 09:09 PM MST
Today was a good day for us. Alec's ANC count was up from 100 yesterday to 1000!! He got to leave the unit with a mask and go on a scavenger hunt. Alec hasn't been able to leave his room for about 5 days now and the walls were really starting to close in. Everything is starting to look better. They still aren't sure why he's having the fevers, but they think it is from the mouth sores. But now that the counts have come up, the fevers will hopefully go away. His heart rate is still a little high, but hopefully that will go down too. Alec finally got in the bathtub today and seemed to enjoy it. Not that he would actually tell me he liked something, but I think it did him good. Bobby went ahead and shaved the hair that was left on his head, so he's pretty much bald now. I guess now we fit in with all of the rest of the kids up here. Alec's Granny and Papa are on their way right now and will hopefully be here soon. It's snowing like crazy outside so they will probably have bad roads. Bobby is at his sisters watching football, again! I've decided I need something to do 2 days a week for 4 or 5 hours, but I don't really know what to do. I guess I could always take a nap because sleep don't come too easy around here. Bobby and I hopefully are going home tomorrow and I finally get to see Colie because I haven't got to see him in a week. If things stay good hopefully we will get outta here for a couple of days before we start another treatment. I won't do any updates for the next couple of days, unless my dad decides to do them, so I will update as soon as I get back. Hope to talk to all of you soon. Thanks for everything, Kerri
Kerri and Bobby went home yesterday. Cindy and I are here at the hospital with Alec.
Alec had a CT scan yesterday to look for what could be causing his recurring fevers. Nothing showed up. They are telling us it is just a small touch of pneumonia that is causing him to have an elevated temp - or it could be the sores that are in his mouth and throat that are causing it. The tumor is definately smaller than the last time - that is the really good news.
He gains a little weight as the days go by - there must be something good in the IV that nourishes him.
His coughing is productive even though it is annoying and painful. It's difficult to work the phlegm up through the mass of sores in his mouth and throat.
Day before yesterday was a good day, yesterday was not. We're hoping for a couple of good ones to string together once in a while.
We focus on the good things but laying here in this room is a little boy with a fever that rarely goes away. He has sores in his mouth and throat. His heart rate hasn't been under 120 for weeks from the stress of the pain and fever - he has a tube sticking out of his chest that is connected to the 2nd largest artery in his body that is used for all his IV medication and feeding. He is on oxygen. He is not the worst here by far. We will continue to help him battle this. Yuor continued support means so much to us. Thank you.
Cindi & Dan 12-25-2007, 02:53 PM Merry Christmas Alec,
Just wanted to stop by and let you know that I am thinking about you today.
Keep up the good work sweetie! I love you!
Cindi
What Kerri doesn't tell in these updates is how she continued to question the docs choice of medication. They kept saying "just wait" and she was saying we don't need to wait if you would quit giving him medication that isn't working and makes him worse!
Funny how things change if you make the staff work. Take nothing for granted in situations like these.
December 25, 2007 at 10:59 PM MST
Merry Christmas!! Santa arrived early this morning and left Alec more presents than he knows what to do with. He still has a ton more left to open, but I think he will do it tomorrow when he feels like it. Today was another good day for us. The antibiotics seem to be working magically and the pneumonia seems to be clearing up. The fevers are still there but only about once a day. They seem to always come through the night, but that's expected. I'm guessing that we will probably go ahead with the next treatment on Friday or maybe early next week. We are hoping this time that maybe we will get a little break, but I'm not going to look forward to it. I don't want to go home too early and something happen, so we'll stay here and tough it out no matter how hard it seems. After all, I'm not the one going through chemo. Cole went back to Dove Creek today when his Granny and Papa to see what Santa left him. He was pretty excited. Cole seems to be doing good through all of this, but I know that it's hard for a 3 year old to get passed back and forth and not really comprahend why his mom and dad can't come home. He enjoys being able to hang out with us but it's so hard when he has to go and he cries. But, hopefully in 4 months this all will all just be a memory. It's getting late and Alec is yelling at me because I'm typing too much. I will talk to all of you tomorrow. Kerri
December 24, 2007 at 10:26 PM MST
Merry Christmas to all of you from Salt Lake!! I hope you guys are all enjoying your Christmas. Hopefully DC got some snow, we got a lot today. Alec is patiently waiting for Santa to get here. The nurses told him that because we are on the 4th floor that we can hear the reindeer land and we are the first to know Santa has arrived!! Cole is with my mom and dad impatiently waiting for Santa. He just doesn't quite understand why you have to go to sleep before Santa comes. Anyways, today was another big day. Everyone was kinda at a standpoint as to why the fevers are still there. There was talk of doing surgery on the right lung to see what kind of pnuemonia he has. Who knew there were different kind of those?? The head doc of the infectious disease department came up and figured out exactly what it was. When Alec had his last spinal, he aspirated a little bit into the right lung, so that's what it is. They changed his meds, thank goodness, so hopefully we will see some improvement, but just in time to start another round. I guess with this kind of cancer it's very important that all the treatments stay on track, so no chance of going home anytime soon. I just have to realize that getting better and staying on top of this thing is more important than a couple of days at home. I'm just hoping that the next round goes better. Hopefully we will get to come home sometime in January, but we'll just wait and see. We had to rent a apartment up here because you can only stay at the Ronald McDonald house for 30 days, but the apartments are fully furnished so Cole will have somewhere he can stay for longer than a couple of days with us. Well I just thought I would give you all an update because I'm sure you are probably wondering what's going on. I hope all of you have a Merry Christmas and know that we are thinking of all of you. Love, Kerri
RedBullJeep 12-26-2007, 12:49 PM We are glad to hear the updates...they sound more like good than bad and that is a great thing! Please keep the news coming and tell Alec Santa brough my kids a lump of coal with a note the Alec was sooooo good that he got all of the presents! :dustin:
Rudezuk 12-26-2007, 03:24 PM Just dropping in to tell Alec that we are thinking of him. :D
Shane - how are the kidney stones?
Thanks Dustin - you always bring a smile!
Alec left the hospital today for 48 hours. No fevers for 24 hours and a good CT scan and xray were his ticket out. Once the aspiration pneumonia was diagnosed and the correct antibiotics prescribed, he bounced back fast.
It'll be hard to walk back through those doors for round 2 of the chemo on Saturday. Here is to hoping the next round has fewer complications than the last one!:beer:
We really appreciate all your cards, letters, posts, gifts, thoughts and prayers.
Thank you
18 December 29, 2007 at 01:35 PM MST
You are probably all wondering why there hasn't been an update in 4 days, but we actually got discharged for about 30 hours and I couldn't get the computer to work. Yesterday Alec had to go get another spinal and then started round 2 of chemo. I'm hoping that this round goes better than the last. I'm sure that it will due to fact that he didn't have major surgery and his body is actually doing well. He still has the pneumonia but it's slowly clearing up. The chemo will be done on Tuesday and they are already talking about us going home on Wednesday. I am NOT going to look forward to it because I don't want to get our hopes up. We are now living in the Ronald McDonald Apartments because we were homeless we finally got to leave. They are very nice and Alec seems to enjoy them. We would still like to come home but that's not our call. Alec is doing well today and is sending me on a mission to find chocolate chip cookie dough ice cream. I had to go at 10:30 lastnight and buy pizza rolls and then of course he didn't end up eating them. His taste is still off, but hopefully it will get back to normal. Alec is yelling at me because I take forever to get his ice cream so I guess I will go. I will write all of you again tonight when I have more time, but I just wanted to let everyone know what's been going on. Talk to all of you later, Kerri
EMIEVEL 01-02-2008, 10:47 PM Hello,
I don't know you or Alec, but just want to drop a note letting you know a lot of people are pulling for him and appreciate the updates.
Chris
rpm4x4 01-02-2008, 11:04 PM Hello,
I don't know you or Alec, but just want to drop a note letting you know a lot of people are pulling for him and appreciate the updates.
Chris
X2 Prayin for you guys. Thanks for the updates.
Here is Kerri's last update - thank you for all your support - it means a lot to us for you to just drop a line saying you are thinking or praying for Alec. This entire experience has been about small victories in the midst of this huge adversary called cancer. Your posts here are definately our small victories that keep spirits up and morale high.
20 January 02, 2008 at 10:59 PM MST
We are FREE!! We got discharged yesterday about 5:00 yesterday and hopefully won't be back until the next round on the 17th. There are still so many things that Bobby and I have to do to be able to be out of the hospital, but we are learning fast. Alec has a blood draw in the morning and then we start giving him the shots to boost his white count. I'm not looking forward to that but I'm sure I'll be just fine. It's alot different giving shots to your own child than to a nurse! We got away today and went and drove all around downtown. We went and saw the State Capitol and that was pretty cool. Alec is still having a hard time finding food that tastes good, but hopefully it will get better. Still no side effects from the chemo, but I'm going to plan on them. I pray that he don't get them, but at least this time I'm prepared. He seems to be doing good and little Colie trys to keep him entertained, but he actually just annoys Alec. Alec got a bath tonight and really liked it. We have to put saran wrap around his chest so his line don't get wet but other than that he enjoys it. I guess that's really all for today. Just loving that we can sleep with no machines and just enjoy hanging out together without being in a hospital. I guess we are going to finally go to bed but I will write all of you tomorrow. Thanks for all the messages, it means a lot!! Kerri
Rock Ape 01-03-2008, 08:03 AM Out of the hospital is good news!!!I hope Alec gets the gift santa dropped off at my place by accident!!!I wish him and your family well.
21 January 03, 2008 at 11:05 PM MST
Nothing really new happened today. We went to the clinic for 2 hours for a blood draw to find out he actually didn't need one. It's kind of frustrating planning your day around everyone else's. Between clinic visits and home health, it get's hectic. Alec seems like he is getting mouth sores again but they don't look too bad. The key is to keep his mouth clean, or that's what I heard from another mom, so let's hope that it works. We will find out Monday wether or not we get to come home, but I think we will sneek home if they tell us not to go. I think it would do a lot for Alec, emotionally, to be at his own home. I guess we will just see what happens. Hopefully his counts will be up and visits won't be a problem. If his counts are down, as much as we love to see all of you, we are asking that no visitors come to the house. With cancer, you just can't take the chance because a cold for you and I is nothing but for him it just turns into pnuemonia. Hopefully though things will go good and we will get to see all of you. I will write all of you again tomorrow. Thanks, Kerri
zukiester1 01-08-2008, 11:33 AM btt
22 January 08, 2008 at 11:54 AM MST
Well we are back in the hospital again. Alec has a fever and no white count, so I guess we'll be here for a little while. He has mouth sores again so were hoping that it is the cause of the infection. They did a chest x-ray lastnight and that was good and everything else looks good if we could just get rid of those mouth sores!! We did get to spend 6 days away and it was wonderful but at the same time it still wasn't home. We were actually planning on coming home yesterday, but I thought with his counts being down maybe we should wait. I guess it's a good thing we decided to stay. Bobby met my dad yesterday with Cole and he couldn't wait to get back home. Hopefully things will get better and we might get to come home for a couple of days next week, just in time to start another treatment on the 17th. The doc's say the next 2 treatments won't be near as bad because the chemo meds aren't as strong. They are actually going to send us HOME this time and not to the apartment!! That's really all that's going on. Just hanging out waiting for something good to happen. Only one more month and this place will hopefully not become home again. Alec seems to be doing good considering all the *** he's gone through. His skin is looking better, he smiles, and he still has some hair left. Also, thank you to all of you that helped with dinner/auction this weekend in Nucla. It means so much to know that people are still willing to donate and do whatever is asked. It means so much to us. Well I guess I will go. I will write again when I know some more. Keep the prayers and support coming. Kerri
pure-adrenaline 01-08-2008, 07:23 PM glad to see the updates.......most of the time the only good thing to read on here is what our lil rockstar is doin.
RedBullJeep 01-09-2008, 10:30 AM We sure appreciate hearing the news and have Alec and your family in our thoughts. Tell him Becca and Dustin say "What's Up Alec!!!"
23 January 09, 2008 at 07:21 PM MST
Things were a little better today. His white count went from a nothing to a .01, which in our world is great. Once the counts start coming up again, hopefully the fevers and mouth sores will go away and the hopes of going home will be a reality. He is currently on a pain medicine that continusly runs so that keeps him as comfortable as he can be. The fevers are still there, but not as bad as they were last time. The doc's only will give him motrin one time and we used that dose this morning. I'm afraid I might have to get mean again and tell them how it's going to be. I was nice before I came here and it took alot for me to say something, but not anymore. I just don't have the patience I used to have. My mom and dad are coming up this weekend and hopefully we might get to come home sometime next week before we start the next round. I'm not going to count on anything because ya know how that goes, we'll just hang out and see what happens. Well, I guess that's really all that's going on. Just thought I would let all of you know. Thanks for everything, Kerri
24 January 10, 2008 at 10:35 PM MST
The white count dance worked!! The white count is now up to a .04 and we finally have an ANC of .02 so let's home they just keep going up!! We are now 18 hours and 23 minutes without a fever. We are in the cancer unit, fevers seem to be the next biggest concern, so you count every hour and minute that goes by without a fever. Hopefully no fevers will come throughout the night and we can make it to the 24 hour mark. We got to leave our room finally and go out for a walk. Alec seems to be better that he has been in so long. I can tell when he's feeling good because he bosses me around. I figure he can be as mean as he wants because if I had cancer, Lord knows how mean I would be! My mom, dad, and Colie are coming up tomorrow. Alec is very exited to see his Papa because it's been about 2 weeks since we seen them last. Cole isn't too excited about coming up because he thinks he needs to go and live at Kendall's house and if I would let him, he would. There is just not enough trains at the hospital to keep him entertained. We are starting the countdown to the end of this place and hope that cancer never is a part of our lives again. We should be completly finished and our way home in about 25 days. That don't seem like a long time for anyone else, but to us, and especially Alec, it feels like a lifetime. I can tell you one thing, I never want to look or do anything medical again, and yes, no more ambulance. Ya know, I just don't think I have the heart to do that anymore. Our whole family will come out of this stronger and we feel, thanks to all of you, the most loved and thought about family in the world. Yes, we still a long, hard road ahead, but I'm hoping that we've been through the worst. That's all for today, hopefully I just get to post more great news. Thanks for all the support, Kerri
rube bonet 01-11-2008, 07:22 AM Thanks for the updates, I appreciate your sharing, we keep Alec in our thoughts and wish you all the best.
zukiester1 01-18-2008, 04:18 AM Alec got to come home for a few days, I think it did him as much good as the medicine does. He had to go back to the hospital though yesterday, he didn't want to leave his home. Hang in there buddy, you can do it !!!!!
Droopy 01-18-2008, 05:17 AM Hang in there buddy.
25 January 18, 2008 at 02:03 PM MST
You are all probably wondering why there hasn't been an update in awhile but most of you know that we got to go HOME!! It was so nice to just be able to hang out and not really do anything. Alec got back to being his happy self and even played with Cade, which is a huge accomplishment in his world. He got to see the wrestlers, but most of all he got hang out with BillyRay, who he asks about everyday. We are back at the hospital again starting our next round of chemo. The doc doesn't seem to think he will get any mouth sores or any effects this time and she don't even think his counts will go down which means no more shots!! We are just hoping that everything continues to go well and we will be able to come home by next weekend. It was pretty hard to leave yesterday but even harder to walk through the revolving glass door this morning. But, we are almost done and hopefully this place will become a memory. Well Alec is ready to go for a walk so I will write again tomorrow. Kerri
26 January 20, 2008 at 04:10 PM MST
We had another good day yesterday filled with lots of smiles and a lot of walking. I guess the bad thing for the day was walking out to my car and finding out I got robbed. They broke the window and took the boys' DVD players, satellite radio, shoes, some clothes, and about $500.00 worth of PS2 games, and my registration to my car. I should have known better and covered up the DVD players, but coming from a small town you never think of stuff like that. Bobby's sister loaned us her car until my window can be fixed. The window people will hopefully be here tomorrow to fix it. There is glass EVERYWHERE and I don't think I will probably ever get all of it. Other than that, everything is good. Papa, Granny, and Cole came up yesterday and Alec was very excited to see them. The hopes of still going home the first part of next week looks good. We are almost done thank goodness. I don't know how people do this for years and years. No, we are not in the clear, we will still have to come up every 3 months for a CT, but hopefully that will be all. Thanks again for all the support and donations. We really do appreciate it!! Thanks, Kerri
27 January 22, 2008 at 09:55 PM MST
It was another good day for us here. Just alot of walking, of course, and playing the Wii. Alec thinks it's pretty cool and so does his dad. It's good that he likes it because it makes him get up and be active. That's another thing to add to his wish list! We will get our last dose of chemo on Thursday and we will also get another spinal done, and hopefully will be headed home on Friday. Hopefully we will actually get to stay home until the 7th of February. We are so happy that everything has went so well. It just makes you realize how wonderful life is and how unimportant the little things that bother you are. There really isn't much else going on up here. We will be moving out of our apartment this week and it's amazing the amount of stuff we still have up here. I guess I will go to the apartment and finish up the laundry. It's my turn to spend the night there, but after getting robbed, I don't think I'll stay. It's just a little bit scary because you never know, obviously, what could happen. This whole thing just made realize how wonderful it is to live in a small town. It will be so good to come home!! Thanks, Kerri
Alec has been home since Saturday - he had a fever during the blood transfusion that we thought would keep him incarcerated for another day but Kerri talked them into letting them go with a contact in the morning. All went well and they made it home Saturday. (Give blood when you can)
Cindy and I were up there last weekend and Alec was playing the Wii and challenging anyone that wanted to play - this weekend is a different story - he is OK but the chemo is taking a toll on his strength and stamina. He has to be helped on stairs and if he sits on the floor he has to be helped up. His counts as of Monday were down but not too bad. So far so good.
I've given this time a name - Chemo Hell - I have no idea how it feels but I know it is bad. This time isn't as bad as the last 2 times, so far. One more round and if things look good he is free from the drugs that steal the little boy out of him - if not - I won't go there - I'm hoping for the best.
We thank every one of you that have taken the time to help our family. Your words of encouragement, gifts and donations are what has kept us going through this. Keep Alec in your thoughts and prayers - this isn't over yet! While you're at it say a good word for Zach Yost - these two little boys are fighting for their lives, lets give them all the help we can.
rpm4x4 01-29-2008, 09:47 PM It breaks my heart that anyone has to go through this. Keep fighting the fight, were all praying for you. Get well soon Alec.
RedBullJeep 01-29-2008, 09:58 PM Kerri, do you guys have a Wii of your own?
No they don't - but we're working on it.
Alec went to Farmington yesterday for a very special treat:
http://www.daily-times.com/news/ci_8146898
rpm4x4 02-02-2008, 07:59 PM WOW! Thats pretty cool. I bet he was stoked about that.:smokin:
Rock Ape 02-02-2008, 08:21 PM Thats awesome!!!Im sure that has lifted his spirits.Nice to see people doing good things :D
Get well soon!!!!
Alec is headed back to Salt Lake for his last scheduled chemo treatment.
He goes in tomorrow for a spinal tap - draw a sample of spinal fluid then inject chemo drugs in the spinal fluid.
They'll start the chemo drip that will last 6 days tomorrow night.
He is just recovering from the last round ( he couldn't wait to show me last night how he could walk up stairs without help) and he is starting another.
Hopefully this is the last time.
Thanks for your thoughts and prayers -
pepdaddy 02-08-2008, 07:58 AM Great sotry, helps to renew your faith in people when you hear or see total strangers doing so much.
Good luck with the chemo, it's amazing how strong these kids are. Everyday I look at Zach (Yost) and am amazed how he's doing. Best wishes Pepper
29 February 09, 2008 at 08:33 PM MST
It was another good day for us. I think Alec might have a little touch of the stomach flu so he's not eating very much so they gave him a pill to increase his appetite. Hopefully, he will start eating again and he will be able to quit taking it. The dieticians thinks that he should weigh alot more than he does, but they don't understand that he has never weighed a lot. But, they know best. We talked to the Oncologist Doc this morning and found out about the CT. There a few little spots around the kidneys that they couldn't see before because the mass in his belly was so big. But now it has shrunk quite a bit, they were able to see the spots. We will come back in 3 weeks and they will do another CT. If they are still there, they will go in and do a biopsy and see if it's cancer or scar tissue. If it is cancer still, we will start chemo again. We are not sure how many rounds, but it's sounds like maybe just one or two. No one is really saying too much right now, because it's just kinda hard to tell what it is. But, we are thinking positive and hoping that it is just scar tissue. We are just glad that things have gone as well as they have. We just want to thank everyone for everything they have done. Wether it is donations, dinners, jars, raffles, it didn't matter, everyone is more than willing to pitch in. You have no idea how much it means to us and saying thank you is not enough, but thank you anyways. This is the hardest thing I hope we ever have to go through, but thanks to all of you, you have made it a little bit easier. We will never forget how much everyone helped us. But, like I said earlier, we are so far from being done. We still have a long hard road ahead, but we will be just fine. Keep us in your thoughts and prayers. Love, Kerri
February 12, 2008 at 09:47 PM MST
Hello again. Today was about the same as the last couple of days have been. Alec is still sick to his stomach and we are not sure if it's the medicine he's getting for his chemo or if it's the stomach flu. Everytime he eat's he get's sick, but hopefully tomorrow he will be better. He also has a cold, but his lungs are clear, so we'll just see. Alec will go in for his spinal tomorrow morning and the hopefully the last bag will be hung tomorrow night and we will be outta here late Thursday night. Thanks to everyone who attended, helped, or donated items for the dinner on Sunday. From what I hear, it was a HUGE success! It's so amazing that people are still so willing to give, but we still have a very long road ahead. Well I've done the nightshift the last 2 nights so I think I will go to bed. I will write again tomorrow and maybe I will be able to give you some good news. Kerri
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WE ARE DONE!!! This is by far the most exciting update that I've had to do. They hung the last bag of chemo about 5:30 tonight and will finish tomorrow! We still have the CT we have to come back for, but our doc said today that she wasn't worried about the spots by the kidneys, so that's great. The whole nursing staff sang Alec the last chemo day song and made his a good luck sign. He did smile, but just a little. He is still getting sick, but not as much. We are so glad to be going home, but we will miss this place. The staff is so wonderful and without them it would have been a lot harder. Alec even said today that he was going to miss everyone. Ya know, when you spend so much time here, the staff becomes like part of your family. We do have our favorites that we will have to come back and see, but hopefully we never have to come back for chemo again. Well I just thought I would do the last update. Alec has to get his dressing changed, so I gotta go. I will see all you later!! Love, Kerri
ne14jpn 02-13-2008, 09:35 PM That is great news!:D We wish Alec the best. He is in our prayers.
Rock Ape 05-09-2008, 11:49 PM Updates??I have been wondering how the little guy is doing???
Lil' Crawler 05-11-2008, 08:01 AM Alec is doing very well. He is now back to school and will graduated from Kindergarden next week!! He is riding his motorcycle, playing with friends, and back to being a healthy 6 year old again. We will go to SLC every 3 months for next 2 years for a CT and then once a year after that. He got his line out in March and everything looks wonderful. We are not out of the woods yet, but we don't think about what could happen. Alec likes to tell everyone that he kicked cancers ass and loves to show people his scars.
Thanks to all of you for the thoughts, prayers, posts, packages and everything else. Alec thinks all of his rock racing/crawling buddies are the coolest people in the world so it meant a lot to know that all you thought the same about him. We are still trying to find places to put all of the stuff that all of you sent to him! I just wanted to let all of you know how thankful we are and appreciate all of your support. Alec now his own user name for the board, so I'm sure he will write to all you.
Also, please continue to pray for little Zach Yost.
Thanks again, Bobby Kerri and Alec
zukstur 05-11-2008, 10:22 AM Alec, Were so thankful that you kicked the cancer and now its Zacks turn. Our prayers are with you guys and your familys.
Love ya.
baja racer 05-13-2008, 12:06 PM Great to hear that things are getting better!!!! we think and talk about you guys quit a bit. you guys have ben in our thoughts and prayers from the begining. let us know if there is anything that will help. let us know if there is anything you need. take care!
-josh an niki
Rock Tech Racing
Alec update!
Just a note to update and thank you all so much for your support, thoughts, prayers, gifts and just for being there with words of support - thank you just doesn't seem to be adequate but I don't know what else to say.
Merry Christmas
It has been a year now since our live were forever changed. On November 26, 2007 we heard the worst news any parent could hear, that our child had cancer. But, we knew that Alec was a fighter and that he would get through it, and he kicked cancer's butt (Alec wanted me to put that)! On the 25th of this month Alec will be 10 months CANCER FREE! We still go to Salt Lake every 3 months for check-ups and we will continue to do that for the next year. Everything is looking good so far and the best thing, for Alec, is he does not have to have any more catscans and no more IV's. They will just be doing an x-ray of the chest and an ultrasound of his belly.
Alec is now in the first grade and just had his 7th birthday. He played football with his friends and is impatiently waiting for wrestling to start. Alec also wants everyone to know that he welcomed a new baby brother, Carson, on November 18th. It's amazing what can happen in a year!! Alec is doing very well and getting very tall and fat. He is very excited for Christmas and can't wait to see what Santa will bring him.
I would like to thank all of you for all that you have done for Alec and our whole family. Because of all of you, this horrible expierience was a little easier. It was so nice to know that there are so many wonderful people out there that care so much about us. Words could never express how much all of this means to us and that your kindness will never be forgotton. We would love to thank each of you in person, but that would be impossible, so I'm hoping that all of you will get a chance to read this e-mail. Alec would now like to write all of you a note of his own:
From Alec
THANK YOU FOR EVERYTHING THANK YOU TEXENS FOR THE HELMET BECAUSEI LIKE THE TEXENS I MINED MY FAMILY I LOVE YOU alec
Big Rich 12-25-2008, 12:24 AM This is so great to hear....
Alec, good luck in wrestling :D
Big Rich
YELLOWHOBO 12-25-2008, 09:44 AM Way to go Alec...
Take care of that brother!
Merry Christmas!
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